Who is using the ComeBack Strong App for Stroke Recovery?


To share your feedback privately, especially if you have news of any updates to this app, please contact me here or post publically in the comments below if you'd like to share! ComeBackStrong App Review Update: In a previous post, I reviewed the National Stroke Association's App, ComeBack Strong,  for helping stroke survivors and their caregivers …

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Are cardiologists and neurologists finally working together to find consensus on the role of patent foramen ovale (PFO) closure after stroke?


The decision to close a PFO after a stroke should certainly only be made after extensive testing and collaboration by patients and clinicians working closely together.  From my experience being involved as a stroke patient advocate and following the stories of cryptogenic stroke patients with PFO over time, I've learned first hand that part of …

Stroke and Young Adult (SAYA) Program at Tufts Medical Center


Help needed to learn more about stroke and young adults. Can you share your story? post by David Dansereau,MSPT Know-Stroke.org A stroke is devastating at any age.  When you are forced to deal with a stroke at a young age, there are many additional challenges during your recovery.  From getting back your independence, restoring your identity and …

New American Academy of Neurology (AAN) Guidelines on PFO Closure in Cryptogenic Stroke are Discouraging


AAN Ruling Again on P values NOT Patient Values [In my opinion this is very discouraging news and more evidence to show there is still a great divide in how neurologists and cardiologists treat cryptogenic stroke with known PFO.] Despite the hard work of PFO patients (like myself) to make a difference by providing testimony and …

First AHA/ASA Stroke Recovery and Rehabilitation Guidelines


On May 4th in their publication Stroke,  the The American Heart Association/American Stroke Association (AHA/ASA) for the first time issued guidelines on stroke rehabilitation and recovery.  This scientific statement on rehabilitation is the 8th set of stroke guidelines from the American Stroke Association, and these guidelines focusing on recovery are the last of the association's recommendations for …

FDA Circulatory System Devices Panel Votes to Approve Amplatzer PFO Occluder


Post by David Dansereau,MSPT Know-Stroke.org On May 24,2016 I provided patient testimony at the Circulatory System Device Panel at the FDA along with Bray Patrick-Lake and Peggy Mahrt of the PFO Research Foundation and several other patients who also traveled to Washington DC to share their stories.   I wanted to share my FDA  testimony …