Stroke and Young Adult (SAYA) Program at Tufts Medical Center


Help needed to learn more about stroke and young adults.


Can you share your story?

post by David Dansereau,MSPT Know-Stroke.org

David Dansereau at Know-Stroke.org

A stroke is devastating at any age.  When you are forced to deal with a stroke at a young age, there are many additional challenges during your recovery.  From getting back your independence, restoring your identity and returning to life after this life changing event, there are many obstacles to overcome. Typical current models for treating and guiding individuals after their strokes often do not account for long-term survival and the unique recovery needs encountered by young adults that suffer a stroke.

With the help of experts in specialties across Tufts Medical Center, Vascular Neurologist Lester Y. Leung, MD hopes to make a difference in young stroke survivors lives and improve the model of care for young survivors.  Dr. Leung has built a comprehensive, longitudinal care program for Stroke and Young Adults (SAYA) to help young adult and pediatric stroke survivors navigate their lives after stroke.

The Stroke and Young Adults (SAYA) Program is built to help identify causes of your stroke, optimize prevention of future strokes, estimate your risk for recurrent stroke and late complications of stroke, and provide counseling on stroke survivorship.  Dr. Leung currently needs your help and wants to learn about your experience with stroke.

Here is a brief intro to the SAYA interview study:


Are you a stroke survivor? Did your stroke or TIA (transient ischemic attack) occur between ages 18 and 55? Dr. Lester Leung and his team at Tufts Medical Center are interviewing young and early middle age adults about their experiences with their strokes to better understand how people develop symptoms in these age ranges, how they decide to seek medical care, and how they make decisions about their health after their strokes. If you are interested in participating, please contact Dr. Leung at lleung@tuftsmedicalcenter.org. Interviews usually take about 30-45 minutes and can be done in person or over the telephone. The team is giving participants a $15 Amazon gift card as a sign of gratitude for participation in the study.

 

What do you need as a stroke survivor outside the clinic?


Outside the clinic and hospital, the SAYA Program at Tufts would like to help you connect with other stroke survivors and their families to get out of the house, share experiences, or just have some fun! They’re interested in hearing your ideas and preferences for the social/educational/support aspect of the Stroke and Young Adults (SAYA) Program at Tufts Medical Center. This program is the first and only one of its kind, and we’d like to tailor it to your interests. Would you like the events to focus on being fun, or would you like an educational or support piece built in as well? What sort of things would you like to do? Let them know here.

They’ve invited you to fill out the form SAYA Social Survey. To fill it out, visit their survey here.


Resources:

Learn more about Dr. Leung

Overview of SAYA Program at Tufts

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Feeling Lucky??


There’s still time to enter and win a copy of my book through  my Amazon Giveaway


Click below to enter directly through Amazon or read this post to learn more
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Good Luck!

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Did you grab this FREE About Herbs App?


A Guide to Botanicals,Supplements, Complementary Therapies and More

If you are on our Know-Stroke.org Member News List you already received this free About Herbs app link.  I wanted to also share this information with my stroke community here so you don’t miss this resource.  I’ve learned from our Smart Moves Webinars that many stroke survivors often have  questions about supplements and herbs and I found this app to be a helpful free tool to provide some of those answers.  Learn more here….

Learn about this Free App in our latest Know-Stroke.org News Post

First AHA/ASA Stroke Recovery and Rehabilitation Guidelines


ASA logoOn May 4th in their publication Stroke,  the The American Heart Association/American Stroke Association (AHA/ASA) for the first time issued guidelines on stroke rehabilitation and recovery.  This scientific statement on rehabilitation is the 8th set of stroke guidelines from the American Stroke Association, and these guidelines focusing on recovery are the last of the association’s recommendations for the continuum of care for stroke patients and their families.

Grade the Guidelines

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How do you think the AHA/ASA did with their guidelines for stroke recovery and rehabilitation?  Do you think they hit the mark or fell short for stroke survivors and caregivers?

Give the guidelines a grade here:

 

I believe the guidelines scored a solid B (maybe minus).  Here’s my bottom line on the guidelines, and why I believe they fell short.

I just posted it to know-stroke.org. Check it out!

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Body in Balance Principles Help in Recovery


The following is a recent 5 Star Review of Body in Balance on Amazon

Amazon5starsI’ve adopted the simple diet an exercise principles outline in the book and used them to fuel my obsession to get better. –March 21, 2016 By Eddie
This review is from: Body in Balance: Bare Naked Truth on Nutrition Fitness and Food Policies Impacting Your Energy and Your Health (Smart Moves Guidebook Series) (Kindle Edition)
“Following a serious spinal cord injury, I received this book as a gift during my stay at a rehabilitation hospital in Boston, Ma. It has become my bible! I’ve adopted the simple diet an exercise principles outline in the book and used them to fuel my obsession to get better. The author, David Dansereau, understands recovery from both a personal and professional level. He is a stroke survivor and a Physical Therapist/Sports Nutritionist. Using this unique background he has put together the ultimate hand book for both recovery and everyday living. Thank you David for your honest straight forward approach to fitness and well being.”
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Do You Have a Copy of My Book?


My Book, Body in Balance is an Amazon Best Seller in Preventive Medicine!

I get asked often, “Is Body in Balance About your Stroke“?

The short answer to this question is “No” but the actual answer is somewhere in between because much of what is in my book came from my own research and experimentation of how to set goals to best restore balance to my body through proper nutrition and therapeutic exercise.  My research can be used by anyone needing to get clear on their goals and follow a game plan to take action getting started on the right path.

Order Your Copy Here  on Amazon for Kindle or Paperback

If you want more help to learn more about goal setting and restoring balance after a stroke register for my free webinar here.

 

What a Boston Marathon Finish!


Congratulations to all the athletes that achieved their goals and completed today’s  120th Boston Marathon.  What a finish especially in the men’s wheelchair race with Marcel Hug from Switzerland finishing first again this year with a time of 1:24:01.  Hug was able to hold off ten-time champion Ernst Van Dyk of South Africa and Kurt Fearnley of Australia at the finish line.  At one point with less than 15 yards to the finish, the three racers were all side-by-side by-side.  What an effort!

If you missed it, watch this video of the finish as Van Dyk (1:24:02) and Fearnley (1:24:03) were a near photo finish and after 26.2 miles the men’s wheelchair race came down to less than a one push difference!

Here’s a  photo of the finish line of the men’s wheelchair race courtesy of CBSBoston with only 3/1oth’s of a second deciding the top three finishers.

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Watch the Video!


Women’s wheelchair division winner: Tatyana McFadden finished in 1:42:16

Women’s overall race winner: Atsede Baysa of Ethiopia with a time of 2:29:18

Men’s overall race winner: Lemi Berhanu Hayle of Ethiopia with a time of 2:12:45


Maybe next year?
Maybe next year?

 

 

Canadian Stroke Survivors Weigh In


Stroke Survivors Bring Great Benefit to Shaping Research

Surviving a stroke is a really confusing experience (to say the least), and unless you have lived through it you can’t really understand the complexity of the situation you are faced with.  When I read about great work that is being done to give stroke survivors a better voice weighing in about what it was like and what would have helped them seek treatment faster I like to share it.   This is great work, and I think we need to do more of it!  As mentioned in this article,  better help certainly begins with better awareness.  The survivors also mentioned more access to care and overcoming those barriers to getting affordable stroke rehab is also needed.

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Many survivors often say they would have acted differently if they had more information on recognizing and dealing with stroke symptoms and if they knew of all the rehab options and technologies that were open to them.  Read the article here in the University of Calgary’s Utoday