FDA approves Amplatzer


News announcement from FDA you’ll be interested in if you’ve suffered a cryptogenic stroke from a suspected PFO and need more choice for treatment.


Update to Recent Post: Long Journey to Improve PFO Patient Voice and treatment Options for Cryptogenic Stroke

Wow, I have personally spent lots of time advocating for this important stroke/PFO patient matter over many, many years but hard work has now paid off.  The FDA announced last week the Amplatzer is now finally approved for recurrent cryptogenic stroke treatment in certain PFO patients!

Congrats and recognition for the commitment from the original team of PFO patients (formerly PFO Research Foundation in the US) that I began this important advocacy journey on with together so many years ago. Thank you!

Read the FDA Notice:

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm527096.htm

Take look back at my FDA testimony and this PFO journey background here:

http://www.know-stroke.org/a-long-journey-to-improve-pfo-patients-voice-and-treatment-options-for-cryptogenic-stroke/

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What a Journey !
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First AHA/ASA Stroke Recovery and Rehabilitation Guidelines


ASA logoOn May 4th in their publication Stroke,  the The American Heart Association/American Stroke Association (AHA/ASA) for the first time issued guidelines on stroke rehabilitation and recovery.  This scientific statement on rehabilitation is the 8th set of stroke guidelines from the American Stroke Association, and these guidelines focusing on recovery are the last of the association’s recommendations for the continuum of care for stroke patients and their families.

Grade the Guidelines

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How do you think the AHA/ASA did with their guidelines for stroke recovery and rehabilitation?  Do you think they hit the mark or fell short for stroke survivors and caregivers?

Give the guidelines a grade here:

 

I believe the guidelines scored a solid B (maybe minus).  Here’s my bottom line on the guidelines, and why I believe they fell short.

I just posted it to know-stroke.org. Check it out!

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King Wilder, 57, never knew he had a hole in his heart until he had a stroke


 Listen to this 911 call and share Mr. Wilder’s  chilling experience of what it feels like to be having a stroke and not be able to communicate.  It was later determined that the cause of his stroke was probably caused from a PFO (patent foramen ovale), or hole in his heart.

 

As shared by The Desert Sun

 

stroke911knowstrokeorg

Body in Balance Principles Help in Recovery


The following is a recent 5 Star Review of Body in Balance on Amazon

Amazon5starsI’ve adopted the simple diet an exercise principles outline in the book and used them to fuel my obsession to get better. –March 21, 2016 By Eddie
This review is from: Body in Balance: Bare Naked Truth on Nutrition Fitness and Food Policies Impacting Your Energy and Your Health (Smart Moves Guidebook Series) (Kindle Edition)
“Following a serious spinal cord injury, I received this book as a gift during my stay at a rehabilitation hospital in Boston, Ma. It has become my bible! I’ve adopted the simple diet an exercise principles outline in the book and used them to fuel my obsession to get better. The author, David Dansereau, understands recovery from both a personal and professional level. He is a stroke survivor and a Physical Therapist/Sports Nutritionist. Using this unique background he has put together the ultimate hand book for both recovery and everyday living. Thank you David for your honest straight forward approach to fitness and well being.”
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Do You Have a Copy of My Book?


My Book, Body in Balance is an Amazon Best Seller in Preventive Medicine!

I get asked often, “Is Body in Balance About your Stroke“?

The short answer to this question is “No” but the actual answer is somewhere in between because much of what is in my book came from my own research and experimentation of how to set goals to best restore balance to my body through proper nutrition and therapeutic exercise.  My research can be used by anyone needing to get clear on their goals and follow a game plan to take action getting started on the right path.

Order Your Copy Here  on Amazon for Kindle or Paperback

If you want more help to learn more about goal setting and restoring balance after a stroke register for my free webinar here.

 

Get Real


 

After a Stroke

Thank you to Nancy Coulter-Parker, Editor for Stroke Smart Magazine for a great interview and article in the current 2016 edition.  Nancy featured some of my top tips for goal setting after a stroke in their “Ask the Expert” column.

Get Real is a great headline, especially for the topic of goal setting.  Here are my top five tips from the article for getting real(istic) with your goals:

  1. Find a Starting Point
  2. Set a Road Map
  3. Know Who is on Your Team
  4. The Power of ‘Why”
  5. Be Accountable

To learn more about each of these tips, please read the article on StrokeSmart

These tips were from my book, Body in Balance, as well as from my Stroke Recovery Goal Setting Webinar. Those resources are listed below.

Resources:

Body in Balance Book

How to Set Smart Goals after a Stroke Webinar

Stroke Smart

By the way, here was my Goal in the picture below:

Read the article to learned how I planned for it….

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A surprising 75 percent of Young Americans under age 45 STILL do not know the signs and symptoms of stroke!


Young Bright Minds at Risk


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post by David Dansereau-Know-Stroke.org

To make matter worse, many of the participants in a recent survey on stroke warning signs admit they would likely wait out the symptoms — weakness, numbness, difficulty seeing or difficulty seeing — of a potentially deadly brain episode to see if things got better on their own.  This “wait and see” approach could be a tragic mistake, because stroke can often be successfully treated if it is caught early.

The first three hours after a person starts to experience stroke symptoms are often referred to as the “golden window,” when doctors can often minimize or reverse damage by restoring blood flow to the brain. Without treatment most will end up dying or with permanent disability.

stroke911knowstrokeorgThe stroke survey was commissioned by the Ronald Reagan- University of California, Los Angeles, Medical Center.  That national survey included responses from 1,009 people, 466 of whom were under 45. Without understanding the danger of the symptoms, the vast majority of those younger people surveyed, 74 percent, say that they wouldn’t seek immediate help.

Dr. David Liebeskind, a professor of neurology and director of the neurovascular imaging research core at UCLA is not surprised by the statistics. “They are in line with what we’ve been seeing,” Liebeskind says. Many younger people dismiss telling symptoms because they think that stokes only occur in the elderly. While they may be more common as people age, “we see them at any age from birth till 105,” Liebeskind says.

Making matter worse, studies have suggested that strokes among people under 45 have increased by as much as 53 percent since the 1990s.

A surprising 75 percent of Americans under age 45 do not know the signs and symptoms of stroke. Even more disturbing, many say they would likely wait out the symptoms — weakness, numbness, difficulty seeing or difficulty seeing — of a potentially deadly brain episode.  Denial is partly why young people don’t seek immediate treatment. Strokes often don’t “Hurt” like a broken arm or heart attack where people need to get help right away.  Symptoms of stroke can be misinterpreted as a headache from stress, a hangover from too much drinking or lack of sleep- therefore sometimes young stroke victims make the mistake of just trying to sleep it off.

And that could be a tragic mistake, because stroke can often be successfully treated if it is caught early.

The first three hours after a person starts to experience stroke symptoms are often referred to as the “golden window,” when doctors can often minimize or reverse damage by restoring blood flow to the brain. Without treatment most will end up dying or with permanent disability.

What you should do:

Know the Stroke Warning Signs. Act in time. Call 911

Here are some STROKE warning signs to look for:

  • Sudden numbness or weakness of face, arm, or leg, especially on one side of the body.
  • Sudden confusion or trouble speaking or understanding speech.
  • Sudden trouble seeing in one or both eyes.
  • Sudden trouble walking, dizziness, or loss of balance or coordination
  • Sudden severe headache with no known cause.

High Blood Pressure and Obesity are Known Risk Factors for Stroke->Learn what you can do to lower your risk!

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References:

MedlinePlus

Today

 

 

ComeBackStrong App Review


ComeBackStrong App


by the National Stroke Association

CB_Circle_BluGry_500pxIn my last post I reported on the ComeBackStrong Movement for stroke announced by the National Stroke Association. ( See Previous ComeBackStrong Announcement )

In this post I am following up with a video review of the ComeBackStrong App.   Designed with feedback and suggestions from stroke survivors and caregivers, this free app by the National Stroke Association is advertised to:

  • Keep track of your medications and set reminders
  • Provide you with exercises to strengthen your arm or leg and improve balance
  • Keep your medical information in one place
  • Provide nutrition and diet guidelines
  • Store reputable stroke information at your fingertips

My Video Review of the ComeBackStrong App

My App Review Summary:

Pros:

  • (+) Clean design, easy to get started (although a welcome video with quick start instructions would be nice addition)
  • (+) Medical Info,Medication,Contacts Entry and Emergency (Send Help Feature) are all excellent

Cons:

  • (-) No Goal Setting Feature
  • (-) Currently only 3 Exercises in Exercise Tracker

What Do You Think of The App?

I gave you my 2 cents, now what do you think? Did this app meet your expectations? Comment below please!  Also please take our quick poll to chime in if you are already using the app, you think you’ll use the app now that you know about it,  or even if you think you are unlikely to use the app.  If you completed the survey when the app was in development we would appreciate your feedback if you feel it met your needs.  Thanks!

Watch this related video for more on stroke recovery goal setting:
https://youtu.be/geAoDoZvD44

Register for my free stroke recovery goal setting webinar:
http://www.know-stroke.org

 

See Previous ComeBackStrong Announcement