Updates from June, 2009 Hide threads | Keyboard Shortcuts

  • Bruschi in a category all his own – Kathryn Tappen – NESN.com 

    David 6:28 pm on June 3, 2009 Permalink | Reply
    Tags: David Dansereau Stroke Blog, Kathryn Tappen, NESN, , Tedy Bruschi and stroke

    Thank you Kathyrn for your article today on Tedy Bruschi and for giving some well deserved credit to a real leader and a true hero for the work he does on and off the field. Many still don’t know about Tedy’s commitment off the field and the work he does with Tedy’s Team and the American Stroke Association. ps-Keep up the hard work Tedy, keep the faith, keep the focus and Never Give Up!!! There are too many stroke survivors counting on you.

     

    Read Kathryn Tappen’s full article here on Tedy Bruschi posted today on NESN David Dansereau Stroke Survivor Member of Tedy’s Team http://www.know-stroke.org

     
  • TodayinPT.com – Heart of the Matter 

    David 1:39 pm on March 13, 2009 Permalink | Reply
    Tags: Barbara Marquand, , , TodayinPT.com

    Barbara Marquand interviewed me recently for an article which appeared in this month’s Today in PT Magazine. Here’s the link for more info on understanding the PFO-Stroke link.  Read the full article

    Making progress towards The Oprah Show

    by David Dansereau

    Article from Today in PT magazine

    Article from Today in PT magazine

    Last month I reported to you that I was picking up the pace trying to spread the word on stroke awareness, even getting interviewed by the NY Times for an article on PFO/stroke. This is just a quick post to show you that I’m still spreading the word trying to get to the big show, that being The Oprah Show with my message.

    I was interviewed by a writer from Today in PT magazine and that article appears in their March issue. You can read it online here: Read the full article

     
  • Does Barry Meier know Oprah? 

    David 9:10 pm on February 24, 2009 Permalink | Reply
    Tags: , , , Oprah and David Dansereau, , , , Tedy Bruschi and David Dansereau,

    If you are a regular reader of my blog you already know I have been doing a great deal of writing on stroke awareness and PFO education.  I gladly accept interviews when asked to talk more about this issue, especially when it can help further the discussion about stroke, migraine and the possibility of PFO closure.   While I have been making consistent progress in gaining national awareness I have not yet reached my goal  (Oprah Challenge) of speaking with Oprah.  For example, I was interviewed recently for the NY Times by Barry Meier (Wed. January 14,2009) and my mug even appeared on the Cover of the Business Daily section

    Don’t believe me? here’s the link to the previous NY Times article  blog post

    Why I am grateful, it is not enough:

    Barry Meier’s NY Times article focused on the business end of the PFO/Stroke/FDA debate, but he did not cover the other side, the human side.  Upon Mr. Meier’s request I had provided details of my own stroke journey which lead up to PFO closure, as well as other stroke survivors who gave me permission to share their contact info with Mr. Meier because they wanted to let others know about their experiences, again the human side.  If you are one of these survivors, or want to imagine having to consider making a decision to close a PFO-please take the poll at the bottom of this post.  I’d like to show more of the human side of perhaps why as Mr. Meier pointed out in his article “it has been difficult to find enough untreated patients to mount a study to prove their effectiveness and safety.”  After speaking with many, many stroke survivors that have a confirmed PFO it is my consensus that they don’t want to wait around for another stroke to see if they can “opt in” for PFO closure.  They want the hole fixed ASAP!

    Here’s where you can help and where Mr. Meier’s article already may have provided a timely boost:

    I continue to need your help to complete this journey. For example, I’ve sent articles to Dr. Oz (a cardiologist often seen on Oprah), contacted Oprah.com many,many times, and made my intentions known to Tedy’s Team, Tedy Bruschi and his wife, and the American Stroke Association (Boston and RI affiliates)- I still need your help. Sidebar:[ By the way, several good things followed from the NY Times Story:  Other writers contacted me (topic for future post)and are considering stories, as well as the countless health bloggers that picked up the story worldwide and posted it internationally.  

    Just one example....

    Here's how one reader already helped without knowing it:

    A reader from the "early days" of my blog who shared his story and frustrations with the medical delays and uncertainty he had experienced recently contacted me again. He originally read my story and my Oprah Challenge.  He shared his frustrations with knowing he had a PFO and having to elect for medical management of his PFO or perhaps enroll in a clinical trial  and either receive a septal occluder for PFO closure or receive a possible "sham" procedure as part of the study.  (By the way, If you would have interviewed him Mr. Meier you would have known why the enrollment numbers in clinical trials are low...)  Anyway, this reader recognized my name in the NY Times article, and instantly "morphed" me on to the Oprah show.



    A reader from my blog noticed me in the NY Times and sent me this "touched up" photo to help me visualize my goals.

     

     

     


    What can you do?

     

    Please take a moment to post your own comments or ideas at this link.

    While this page has a "fun" tone I hope you know I am serious with my stroke awareness plan and hope you can help me follow through with my plan.  After all, the Oprah log worked for Dave Letterman.

    With enough brains and motivation I believe anything is possible... Thank You Barry for giving this story your attention.  By the way, do you know Oprah?

    Summary of My Reaffirmed Goals:

     

    My Goal: I have been working at trying to get through to Oprah and Dr. Oz to suggest a show about migraines,stroke and the heart connection and ideally developing a show for May 2008 or 2009 (May is Nat'l Stroke Awareness Month). Additionally, I have been working to try to get Tedy's Team, and Tedy Bruschi of the New England Patriots to speak nationally (to Oprah) about his stroke and his new book Never Give Up.

    Click here for my Tedy's Team Donation Page to learn more 
    Read my Stroke Story 

    I appreciate any and all comments, leads, ideas you would be willing to provide here:  

    http://www.my-nutrition-coach.com/do-you-know-oprah.html

    Take this PFO Closure Poll

    When you are done with the poll, share your suggestions directly with Oprah.com and be sure to link back to this blog post to include all the details and my “WHY”

    Could you take a moment to write in to Oprah.com for me? Here’s the link

     
  • Popular, But Not Science ?? 

    David 4:46 pm on January 14, 2009 Permalink | Reply
    Tags: , David Dansereau and PFO, , stroke and migraines, stroke and PFO closure

    Image Preview

    Barry Meier of the New York Times interviewed me recently for an article on stroke and PFO.  His story appeared in the New York Times Business Day section today with the same title as this post.  I’ve only added the question marks because after reading the article it only leaves me wondering why science and big business can’t get it right… read the article and I’ll follow up with my 2 cents in the next post

    http://www.nytimes.com/2009/01/14/health/research/14heart.html?partner=permalink&exprod=permalink

     
    • eideard 1:52 pm on January 15, 2009 Permalink | Reply

      David – thanks for dropping by and commenting at my personal blog – where I’d posted Meier’s article.

      Primary source info is a scarce commodity, nowadays, No less so on the Web.

  • More Research on Stroke-Migraine-PFO Connection 

    David 2:04 am on November 22, 2008 Permalink | Reply
    Tags: AGA Medical, , PFO-Migraine Connection,

    Here’s a quick video replay of a story that came out today on Channel 5 in Boston.  It shows a clear illustration and explanation of how PFO’s are closed and interviews a woman that has had a significant reduction in her migraines after PFO closure “from about 25 migraines in a month to maybe four migraines a month after the procedure”. Read her story…

    For all the folks that were disappointed when ORlive pulled down that great teaching video I had embedded on PFO closure, this quick video gives you a great look at what a PFO occluder looks like.  (It’s the same one I have in my ticker…)

    Read her story

    View the video


     
  • Bloggers abuzz about sex and stroke 

    David 4:51 pm on September 18, 2008 Permalink | Reply
    Tags: , , , Sarah Palin, sex and stroke, tPA

    WOW!- I know, I used the word sex and “the other “s” word” together- I can explain…

    I mentioned in my last post I’d be following up with more information on the emerging technologies available to enhance stroke rehabilitation outcomes. Well, this post as you can tell from the title is not about stroke rehab directly, (although many stroke survivors might argue that sex would be the most enjoyable and welcomed component to any therapy plan of care).

    Anyway, my point in including this post here is that it confirms my suspicion when you add those three little letters together to form the word “sex” it certainly pulls readers in to any headline and grabs attention.

    The proof: I’ve never seen more bloggers post on any one single stroke related topic in a given week, than this past one, EVER.

    Here’s only a few of the recent headlines:

    “Holy ^@#~ ! “ A stroke from Sex
    35yr Old Woman has Orgasm Related Stroke
    When Sex Leads To Stroke

    That’s enough- I think you get my point….

    Image PreviewUnfortunately, the rise in attention recently for stroke awareness came at the expense of a 35-year old Illinois woman. She, too, at the time probably didn’t realize that sex with her boyfriend could trigger a life threatening stroke that temporarily left one side of her face numb, slurred speech and weakness in her left arm. While her physician treated her, it is reported he was puzzled to find that his patient did not “fit the profile of a typical stroke sufferer”. This stroke survivor is a young, healthy, non-smoking woman with no known cardiovascular risk factors.

    Her doctor acted FAST…

    Her physician found it too late to inject her with tPA, a clot-busting drug that must be administered within three hours of a stroke. In what was reported as a risky decision, he ran a catheter from an artery in the groin to her brain, applying tPA directly to the clot. Her symptoms improved almost immediately and within an hour she was out of danger and is reported to be well on her way to a full recovery.

    Why did I add my first post on sex and stroke?

    Well, I can assure you it was not to grab headlines, Sarah Palin is still leading that category these days. This unfortunate incident did remind me of a topic that wasn’t discussed much during the management of my PFO or during my own stroke rehab. Yes, sex. Is it safe when you have a PFO or other similar known heart defect?

    So, to get to the answer (maybe) let’s look at what was the reason for the recent headline grabbing “stroke after sex” which perpetuated a blogging frenzy As a rule, sex and orgasm triggered strokes are rare in young men and women, though not unheard of. For such a stroke to occur in a relatively young person, experts still argue that it perhaps requires a combination of factors and events, not unusual in themselves, but extremely unlikely to occur at the same time. One variable that seems to be consistent in the cases that have been reported involving young people who (were brave enough to tell the truth) had suffered similar sex related strokes, is that they all had a small opening in the wall between the two upper chambers of the heart, as was in the case of this young Illinois woman. This minor heart defect or opening, called Patent Foramen Ovale (PFO), as you can read more about throughout my blog, is found by many reports to be seen as frequently as in one in four adults. Such an opening allows some blood to flow from the right to the left side of the heart, bypassing lungs only to go straight to the brain. As there are no symptoms, most people with PFO do not know they have this heart defect. It has been reported that 40% of people suffering a cryptogenic stroke ( i.e.) a stroke with no known cause, have been found to have PFO.

    Is sex the culprit?

    It is well reported that strain can cause increased blood flow through a PFO. For example, the strain of bearing down during a bowel movement, strain of breathing out of a shut mouth or holding a breath, and strain during sex, particularly during orgasm,. Experts will mostly agree strokes are not caused by PFO’s alone, there must be a small blood clot present, which must break free and enter the heart, then cross over and bypass the body’s normal “pulmonary filter” instead traveling through the PFO then up to the brain. Normally, the rule of thumb is that small blood clots stuck in the lungs dissolve, but a blood clot that passes through a PFO lodges itself in the brain and causes a stroke.

    Again, with the Illinois woman serving as our own case study here, this young patient suffered a headline grabbing “sex-related stroke” because of her PFO. It was also reported she had a small blood clot in her leg, the possible side effect of oral contraceptives taken for birth control. Doctors generally still report that a vast majority of people with PFOs, often go through life without any problems, and while the risk of stroke during sex must be kept in perspective, the risk is low if you consider the chain of events needed and presented in this post. Fortunately, according to stroke experts, sexual intercourse, in itself, is not likely to trigger a stroke without accompanying risk factors.

    So, now l can get back to writing and researching for my next post of emerging stroke technologies and hope to have that available soon. In the meantime, please use the recent sex and stroke buzz to be reminded that strokes occur all year long, just not during Stroke Awareness Month in May. In fact, here are the stats:

    • 700,000 Americans suffer a stroke each year
    • Approximately 160,000 die of stroke each year

    The most common risk factors for stroke in young people are those linked to migraines, drug use, coagulation diseases, or athletic injuries that cause trauma or injury in the blood vessels, especially in the neck. Even with these risk factors, the chances of a young person suffering from stroke are extremely small but that is no reason to be ignorant of the warning signs. As I’ve been saying all along, there are young faces of stroke and you should know what they look like. Be prepared and get help fast. Know-Stroke!

    As one stroke campaign says well, Time Lost is Brain Lost

    Until next time-

    Written by David Dansereau

     
  • My new video demo shows you how to boost your nutrition for better health 

    David 3:58 pm on September 6, 2008 Permalink | Reply
    Tags: enhance stroke recovery, healthy eating, my-nutrition-coach.com, nutrition following stroke

    Free-Video-Demo


    Be sure to visit my nutrition website.  I’ve just added a new video demo so you can have access to a new multimedia demonstration of my powerful nutrition coaching program. Learn how to quickly and easily balance your nutrition and create healthy customized meal plans that target your goals in three easy steps!


    See the POWER of our nutrition coaching program in Action!

    Redeem your coupon

     
  • Hockey Tribute to Jamie Coyle a Big Success 

    David 2:20 pm on September 1, 2008 Permalink | Reply
    Tags: Hockey Tournament, , stroke fundraiser

    A tribute hockey tournament for Jamie Coyle took place at the Smithfield Ice Rink in RI over the weekend. Her coaches Henry Sherman, Charlie Stimson and Jim Hopgood talk of her recovery in this video. Click on the video to link to play the Providence Journal story by Glenn Osmundson.  On a personal note, it was an honor to take part in this great event to raise funds for Jamie.  I’ll update you on the fundraising totals as soon as I know more, but it looks like her coaches were closing in on $11,000 towards the end of the tournament!

    • Thanks to Jamie’s coaches for inviting me to drop the first puck to open the tournament
    • Thanks to the American Stroke Association in RI for donating the great gift baskets and educational items
    Jamie Coyle Hockey Tournament
    Hockey Tournament for Jamie Coyle
     
  • Fight For Seven 

    David 12:31 pm on August 19, 2008 Permalink | Reply
    Tags: Fight For Seven, hockey player and stroke, , young stroke survivor

    Fight for Seven

    Here’s the latest update on young stroke survivor Jamie Coyle. According to the latest website post, Jamie had a good weekend and has made some great progress already. She is scheduled to begin rehabilitation at Spaulding Rehab in Boston this week. Follow this new link http://www.fightfor7.com/ to read about Jamie and see how you can help “Fight for Seven”.

     
  • Please help young stroke survivor Jaime Coyle 

    David 5:05 pm on August 14, 2008 Permalink | Reply
    Tags: , girls hockey, Jaime Coyle, Paul Dubois, , Tedy Bruschi and PFO, Valley Breeze

    While I was reading through the Valley Breeze newspaper earlier today, the story of 13 year old Jaime Coyle jumped out at me. I learned from the article Jaime is one of the top young female hockey players in Rhode Island and just like Tedy Bruschi and myself, she apparently suffered a stroke from a PFO while playing in a hockey tournament this past weekend. Don’t ask me why, but even before I turned the page from the headline “Young skater Coyle suffers stroke during tournament” my gut told me it was related to her heart. Please read her story here and help if you can. She is currently battling to recover in a Massachusetts hospital and her coaches are planning a fund raiser to help in her recovery.

    For additional updates regarding Jamie, and any upcoming events planned, please visit http://www.RIGirlsHockey.com. A message center has been established so Jamie can stay in touch with her friends and family as she recovers. Please contact the coaches through this website if you would like to assist in any way.

    http://rigirlshockey.com/

    Jaime’s story in the Valley Breeze can be viewed here:
    http://www.valleybreeze.com/Free/MAIN-8-14-ALL-Jaime-Coyle-stroke-victim
    The Valley Breeze article was written by Paul Dubois-Sports Editor

     
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